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Rest in Peace Sweet Elyse

We were so sad to hear of the death of little Elyse Yu.  The following words are taken from her MySpace page:

Sunday, October 07, 2007

"Day +18 Goodbye for now...

Elyse went to be with the Lord this morning at 3 AM in the BMT ward at CHLA. Though our grief is great, we look forward to the hope that we will see her again in heaven.

Thank you for all your prayers and support through out our Journey. We will be posting funeral information for those of you who would like to attend.

It will be in the coming week.

In Loving memory,

Yu Family"

Monday, October 15, 2007

"How we are doing...

It has been 8 days since Elyse's passing and 3 days since the funeral. I cannot even begin to tell you how hard it is to live without Elyse in our lives. Time might heal this wound, but for now we are trying to get by one hour at a time.

Susan and I took the girls to church today. We knew that it was time to try and move forward, though they may be baby steps. We also took some pictures of Faith and Erin today and while reviewing the pictures in the camera we came across some of Elyse taken just a week before she passed. Needless to say, the images got the better of our emotions.

We know that she is in a better place, but a parent's heart always wants their children with them. We miss her.

We thank you for your comments and prayers. Please continue to pray for us. We will need it."

 

Our sincere condolences go to her family and friends and we hope that their strong faith helps them at this tragic time.

The original appeal appears below:


Call to the Asian Community to help Elyse

Elyse Yu is the eldest of triplet sisters born on February 1 2007, to parents Tim and Susan. Her sisters are called Faith and Erin.  On May 6, 2007, she was diagnosed with Hemophagocytic lymphohistiocytosis (HLH) an extremely rare blood disease that effects one out of a million people. Her life along the lives of her parents, family members, and friends changed when doctors diagnosed her with the HLH disease.

Elyse is currently undergoing chemotherapy while searching for a bone marrow match. Her family are calling on the Asian community for help by registering to be a potential bone marrow donor.

Her parents write, "Elyse is now in the "Continuation Phase" of her treatment. Her medications are "pulsed" so that she is getting chemo therapy and Decadron every other week, while all other medications stay the same. We pulse her Decadron by giving her the original higher dose for only 3 consecutive days (Mon-Wed) and stop for 11 days, then back to the 3 day dose again. Monday, July 9th was her first day of her new treatment schedule of Decadron and we definitely see the difference in her general condition and attitude. She is crying most of the time and wants to eat every chance she gets. It reminds us of the first time we started her treatment. She is crying now as I write this entry."

"When her Decadron dose was decreased, we actually saw the "real" Elyse for the first time since she got sick and possibly since she was born. For the past 3 weeks before we went back to the higher dose of Decadron, Elyse's personality has really been shining through. She's been smiling more and interacting with Faith and Erin as you might have seen in some of the past photos. We are discovering that Elyse is playful and likes spending time with her sisters. She rubs their head and "eats their hand" (not really, she only has squishy gums) when we lay them down next to each other. We do notice that she is more mature than her sisters. Susan and I think that her calm and "mature" demeanor might have been shaped by the suffering she's had to endure at such a young age."

"We are waiting for final word from the Cincinnati lab concerning Faith & Erin's results. We are hopeful that they will test negative for HLH. We should get results at least by next week and we will definitely let everyone know as soon as we find out."

click here to find out how you can register

click here to visit Elyse's website

click here to visit Elyse's MySpace page

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